In-Fucking-Sane

This is a breakdown to show the damage my MCTD has done so far.

Mixed Connective Tissue Disease has created the following medical diagnoses:

  1. Fibromyalgia
  2. Thrombocytosis
  3. Neuropathy
  4. Lupus Rash
  5. Tremors
  6. Diminished Cognitive Ability
  7. Vitamin D Deficiency
  8. Edema
  9. Migraines
  10. Myalgia
  11. Myositis
  12. Chronic Pain Disorder

The following medical issues could be caused by the MCTD but it’s not definitive:

  1. Trochanteric Bursitis (right hip)
  2. Iliotibial band syndrome (left hip)
  3. Meralgia Paresthetica (bilateral lower limbs)
  4. Calcified Tendinitis and Bursitis (left shoulder)
  5. Radiculopathy (lumbar region)
  6. Arm paresthesia (left arm)
  7. Radiculopathy (lumbosacral region)
  8. Lumbago Syndrome

These were independently diagnosed but have a cause and effect relationship with MCTD:

  1. Complex Regional Pain Syndrome (left arm)
  2. Post-Traumatic Stress Disorder
  3. Obsessive Compulsive Disorder
  4. Chronic Insomnia
  5. Anxiety
  6. Depression

 My Medications Broken Down

Taken Daily: 23 Tablets and Capsules 

  1. Amitriptyline-100mg (1x daily for Anxiety/Headaches)
  2. Chlorothiazide-1500mg (500mg 3x daily for Edema)
  3. Lyrica-250mg (50g 3x daily for Neuropathy & Complex Regional Pain Syndrome)
  4. Wellbutrin-300mg (1x daily for Anxiety/PTSD)
  5. Belsomra-20mg (1x daily for Insomnia)
  6. Mycophenolate-2000mg (500mg 2x daily for Mixed Connective Tissue Disease)
  7. Etodolac-1000mg (500mg 2x daily for Pain)
  8. Propranolol-20mg (10mg 2x daily for Tremor)
  9. Vitamin C-1000mg (1x daily (for UTI Prevention)
  10. Cranberry Supplement-500mg (1x daily for UTI Prevention)
  11. D-Mannose-500mg (1x daily for UTI Prevention)
  12. Probiotic- (1x every other day for overall wellness

Taken Weekly/Monthly: 1 Capsule and 1 Self Injection

  1. Aimovig-70mg/ml Auto-injector (inject every 28 days for Migraine prevention)
  2. Vitamin D2-50,000 Units (1x weekly for Vitamin D Deficiency)

Taken as Needed: 1 Dissolvable, 2 Tablets, 1 Capsule, and 1 Topical

  1. Ondansetron ODT- 4mg (As needed for Nausea)
  2. Nitrofurantoin MCR-50mg (as needed for UTI Prevention)
  3. Lorazepam-1mg (As needed for Anxiety/PTSD)
  4. Rizatriptan-5mg (as needed for Migraine)
  5. Mometasone Furoate .01% cream (As needed for Lupus Rash)

Despite all that, I refuse to let it take my spirit. I’m a god damn warrior after all.

One thought on “In-Fucking-Sane

  1. Your Autoimmunity Connection says:

    Thank you for sharing. We understand the struggle of having to deal with an autoimmune disease and recognize your strength. If you would like to learn more about autoimmune diseases and ways to improve your health through functional medicine (such as food therapy and movement therapy) check out our blog. We have lots of resources that you may be interested in including the BEST and WORST foods for MCTD (https://drbonnie360.com/2018/11/09/food-spotlight-on-mixed-connective-tissue-disease/)
    🙂 #spooniestrong

    Like

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