End of Week 2 Update

Week two wasn’t as trouble free as week one was. The swelling in my left arm has yet to go down and something has made me vomit once again. Lovely image, isn’t it? It felt awesome too; so much so that I went to my PCP for a “symptom check”. As some of you may know, when you’re on immunosuppressive therapy, there are a certain set of side effects and symptoms that if you begin to feel, need to contact your doctor. It’s a precaution to make sure that my medications aren’t negatively interacting with one another or that I haven’t picked up some type of virus or bacteria. Thankfully, the flu test that my PCP performed came back negative, so the nausea and vomiting is most likely due to the medication or sinus gunk draining into my stomach. I apparently have the onset of a sinus infection, but my PCP is hesitant to give me yet another medication until my Rheumatologist decides whether I should continue the Methotrexate when I’m not feeling well. Since I was toddler free, thanks to my mom, I slept most of the day and by the time I got done working, the office was closed. Soooo I’m just going to take my Methotrexate dosage tomorrow morning as usual and hope for the best. Probably not the smartest thing considering my vacation is a week away (Yay!)

Thank God my PCP was back from maternity leave. She’s seriously one of the best doctors I’ve ever had and one of the only ones who has genuinely done everything in her power to help me along my “medical journey”. Since she’s been gone for a few months I had to catch her up on the ER trips and specialist visits. Since Rheumatologist #2 failed to get me in contact with UNCs’ Rheumatology department, my PCP has taken it upon herself to get me into Duke Rheumatology and promised to have the office nag them so that I don’t have to wait until next year (the wait lists are legit 8 months or longer). She also decided to send me across the hall to the new Nutritionist, so they can figure out just how much water weight is STILL on me (the Lasix did nothing) which will create a baseline going forward. More specialists yayyyyyyy.

One a positive note, the bloodwork that Rheumatologist #1 had me get, came back negative for Rheumatoid Arthritis. I was unable to get the hand x-rays he requested because my daughter decided to go into my desk and use the order as a coloring page. Oi. It’s a catch 22 actually; the tests came back negative for RA but there’s still no explanation for the persistent swelling (particularly in my hands and fingers). Ne-ver. End-ing.

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